Publications by authors named "Ingunn Westerheim"

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The IMPACT Survey: The Economic Impact of Caring for an Individual with Osteogenesis Imperfecta.
Frank Rauch, Taco van Welzenis, Lena Lande Wekre, Cathleen Raggio, Oliver Semler, Ingunn Westerheim

Adv Ther· November 2025

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The IMPACT Survey: The Humanistic Impact of Caring for an Individual with Osteogenesis Imperfecta.
Ingunn Westerheim, Frank Rauch, Tracy Hart, Lena Lande Wekre, Taco van Welzenis

Adv Ther· November 2025

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A systematic literature review of the impact and measurement of mobility impairment in rare bone diseases.
Inês Alves, Ingunn Westerheim, Edward C Hsiao, Jaymin Upadhyay, Luca Sangiorgi

Ther Adv Musculoskelet Dis· September 2025

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Adapting to Adulthood: A Review of Transition Strategies for Osteogenesis Imperfecta.
Luca Celli, Mark R Garrelfs, Ralph J B Sakkers, Mariet W Elting, Mauro Celli, Ingunn Westerheim

Calcif Tissue Int· December 2024

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The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults.
Taco van Welzenis, Ingunn Westerheim, Tracy Hart, Lena Lande Wekre, Oliver Semler

BMC Public Health· November 2024

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Osteogenesis Imperfecta: A study of the patient journey in 13 European countries.
Ingunn Westerheim, Valerie Cormier-Daire, Scott Gilbert, Sean O'Malley, Richard Keen

Orphanet J Rare Dis· September 2024

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The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults.
Tracy Hart, Ingunn Westerheim, Taco van Welzenis, Oliver Semler, Cathleen Raggio

Orphanet J Rare Dis· June 2024

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The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers.
Ingunn Westerheim, Tracy Hart, Taco van Welzenis, Lena Lande Wekre, Oliver Semler

Orphanet J Rare Dis· March 2024

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The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review.
Maria Rapoport, Michael B Bober, Cathleen Raggio, Lena Lande Wekre, Frank Rauch, Ingunn Westerheim

Orphanet J Rare Dis· February 2023

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Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic.
Debra Smyth, Monica Hytiris, Coreen Kelday, Ciara McDonnell, Christine Burren, Ingunn Westerheim

Front Public Health· January 2023

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Patients' priorities and expectations on an EU registry for rare bone and mineral conditions.
Muhammad Kassim Javaid, Marina Mordenti, Manila Boarini, Luca Sangiorgi, , Ingunn Westerheim

Orphanet J Rare Dis· November 2021

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