Publications by authors named "Tracy Hart"

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The IMPACT Survey: The Economic Impact of Caring for an Individual with Osteogenesis Imperfecta.
Frank Rauch, Taco van Welzenis, Lena Lande Wekre, Cathleen Raggio, Oliver Semler, Tracy Hart

Adv Ther· November 2025

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The IMPACT Survey: The Humanistic Impact of Caring for an Individual with Osteogenesis Imperfecta.
Ingunn Westerheim, Frank Rauch, Tracy Hart, Lena Lande Wekre, Taco van Welzenis

Adv Ther· November 2025

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Somewhere to go: a position paper on addressing gaps in transition care for adults with childhood-onset rare diseases.
Laura L Tosi, Tracy S Hart, Gabriela Beug, Erika Carter, Eleanor M Perfetto

Orphanet J Rare Dis· October 2025

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The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults.
Taco van Welzenis, Ingunn Westerheim, Tracy Hart, Lena Lande Wekre, Oliver Semler

BMC Public Health· November 2024

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The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults.
Tracy Hart, Ingunn Westerheim, Taco van Welzenis, Oliver Semler, Cathleen Raggio

Orphanet J Rare Dis· June 2024

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The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers.
Ingunn Westerheim, Tracy Hart, Taco van Welzenis, Lena Lande Wekre, Oliver Semler

Orphanet J Rare Dis· March 2024

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The daily association between affect and alcohol use: A meta-analysis of individual participant data.
Jonas Dora, Marilyn Piccirillo, Katherine T Foster, Kelly Arbeau, Stephen Armeli, Tracy De Hart

Psychol Bull· November 2023

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"Osteogenesis Imperfecta Patients Wish Orthopedic Surgeons Had Better Strategies to Help with…"-Results of a Patient and Parent-Oriented Survey.
Jill Flanagan, Laura Tosi, Erika Carter, Tracy Hart, Jeanne Franzone

Children (Basel)· August 2023

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The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review.
Maria Rapoport, Michael B Bober, Cathleen Raggio, Lena Lande Wekre, Frank Rauch, Tracy Hart

Orphanet J Rare Dis· February 2023

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The Rare Bone Disease TeleECHO Program: Leveraging Telehealth to Improve Rare Bone Disease Care.
Laura L Tosi, Elmer N Rajah, Michael H Stewart, Austin P Gillies, Tracy S Hart

Curr Osteoporos Rep· August 2020

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Mobility in osteogenesis imperfecta: a multicenter North American study.
Karen M Kruger, Angela Caudill, Mercedes Rodriguez Celin, Sandesh C S Nagamani, Jay R Shapiro, Tracy Hart

Genet Med· October 2019

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A Multicenter Observational Cohort Study to Evaluate the Effects of Bisphosphonate Exposure on Bone Mineral Density and Other Health Outcomes in Osteogenesis Imperfecta.
Jaskaran S Bains, Erin M Carter, Kate P Citron, Adele L Boskey, Jay R Shapiro, Tracy Hart

JBMR Plus· May 2019

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Growth characteristics in individuals with osteogenesis imperfecta in North America: results from a multicenter study.
Mahim Jain, Allison Tam, Jay R Shapiro, Robert D Steiner, Peter A Smith, Tracy Hart

Genet Med· February 2019

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Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study.
Laura L Tosi, Marianne K Floor, Christina M Dollar, Austin P Gillies, , Tracy S Hart

Orphanet J Rare Dis· January 2019

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A multicenter study to evaluate pulmonary function in osteogenesis imperfecta.
Allison Tam, Shan Chen, Evan Schauer, Ingo Grafe, Venkata Bandi, Tracy Hart

Clin Genet· December 2018

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