Publications by authors named "Jeffrey Botkin"

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Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing.
Emily Ziegler, Janessa Mladucky, Bonnie Baty, Rebecca Anderson, Jeffrey Botkin

Public Health Genomics· September 2022

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Newborn screening for neurodevelopmental diseases: Are we there yet?
Wendy K Chung, Jonathan S Berg, Jeffrey R Botkin, Steven E Brenner, Jeffrey P Brosco

Am J Med Genet C Semin Med Genet· June 2022

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Exploring the use of a Comic for Education about Expanded Carrier Screening among a Diverse Group of Mothers.
Erin Rothwell, Sydney Cheek-O'Donnell, Erin Johnson, Alena Wilson, Rebecca A Anderson, Jeffrey Botkin

J Commun Healthc· May 2022

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Secondary Data Usage in Direct-to-Consumer Genetic Testing: To What Extent Are Customers Aware and Concerned?
Janessa Mladucky, Bonnie Baty, Jeffrey Botkin, Rebecca Anderson

Public Health Genomics· November 2021

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What Should Physician-Researchers Tell Patient-Subjects About Their Relationships With Industry?
Jeffrey R Botkin

AMA J Ethics· September 2021

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Addressing ethical and laboratory challenges for initiation of a rapid whole genome sequencing program.
Sabrina Malone Jenkins, Rachel Palmquist, Ashley L Kapron, Carrie Torr, D Hunter Best, Jeffrey R Botkin

J Clin Transl Sci· August 2021

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The Ethics of Artificial Intelligence in Pathology and Laboratory Medicine: Principles and Practice.
Brian R Jackson, Ye Ye, James M Crawford, Michael J Becich, Somak Roy, Jeffrey R Botkin

Acad Pathol· February 2021

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Experiences and lessons learned by genetic counselors in returning secondary genetic findings to patients.
Carly Rost, Karin M Dent, Jeffrey Botkin, Erin Rothwell

J Genet Couns· December 2020

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Cost-Effectiveness of Nusinersen and Universal Newborn Screening for Spinal Muscular Atrophy.
Ali Jalali, Erin Rothwell, Jeffrey R Botkin, Rebecca A Anderson, Russell J Butterfield

J Pediatr· December 2020

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Informed Consent for Genetic and Genomic Research.
Jeffrey R Botkin

Curr Protoc Hum Genet· December 2020

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Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial.
Erin Rothwell, Erin Johnson, Bob Wong, Aaron Goldenberg, Beth A Tarini, Jeffrey Botkin

J Empir Res Hum Res Ethics· October 2020

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The case for banning heritable genome editing.
Jeffrey R Botkin

Genet Med· March 2020

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Avoiding Harm From Hyperbilirubinemia Screening-Reply.
Scott D Grosse, Lisa A Prosser, Jeffrey R Botkin

JAMA Pediatr· December 2019

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Clarify the HIPAA right of access to individuals' research data.
Christi J Guerrini, Jeffrey R Botkin, Amy L McGuire

Nat Biotechnol· August 2019

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Secondary research uses of residual newborn screening dried bloodspots: a scoping review.
Erin Rothwell, Erin Johnson, Naomi Riches, Jeffrey R Botkin

Genet Med· July 2019

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Screening for Neonatal Hyperbilirubinemia-First Do No Harm?
Scott D Grosse, Lisa A Prosser, Jeffrey R Botkin

JAMA Pediatr· July 2019

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Implementing a Central IRB Model in a Multicenter Research Network.
Jeri S Burr, Ann R Johnson, Valeriya Vasenina, Stephanie Bisping, R Whitney Coleman, Jeffrey R Botkin

Ethics Hum Res· May 2019

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The Bane of "Boilerplate" Language in Research Consent Forms: Ensuring Consent Forms Promote Autonomous Authorization.
Jeffrey R Botkin

Am J Bioeth· April 2019

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The Use of a Game-Based Decision Aid to Educate Pregnant Women about Prenatal Screening: A Randomized Controlled Study.
Erin Rothwell, Erin Johnson, Bob Wong, Nancy C Rose, Gwen Latendresse, Jeffrey R Botkin

Am J Perinatol· February 2019

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Genetic Contextualism and the Value of a Structured Process.
Jeffrey R Botkin

Am J Bioeth· January 2019

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Should Failure to Disclose Significant Financial Conflicts of Interest Be Considered Research Misconduct?
Jeffrey R Botkin

JAMA· December 2018

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Standardizing return of participant results.
Jeffrey R Botkin, Paul S Appelbaum, Suzanne Bakken, Chester Brown, Wylie Burke

Science· November 2018

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